The BC People Living with HIV Stigma Index Project

The BC People Living with HIV (often called the Stigma Index) is a dynamic research project in British Columbia born out of a community-identified need to turn the tide against persistent HIV stigma and discrimination. Linked to the international People Living with HIV Stigma Index initiative, it is the first community-based research (CBR) study in British Columbia to document experiences of stigma and discrimination from the perspective of people living with HIV.

This action-oriented study will translate community experiences into language decision-makers can effectively use; build a shared agenda to influence programs, services and policies; and positively impact individuals involved. The HIV Stigma Index study is both a process of building partnerships and capacity and an action-based research tool (building on a quantitative & qualitative questionnaire).

Click the image to watch our “What is stigma?” video Click the image to watch our “What would a world without stigma look like?” video

Designed by and for people living with HIV, and led by people living with HIV, this study will inform better evidence-based responses to HIV and related issues, and will empower participants to have an active voice in anti-stigma and discrimination reduction initiatives.

Background on the People Living with HIV Stigma Index

In 2006, four founding partners – the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW), the International Planned Parenthood Federation (IPPF), and the United Nations Joint Programme on HIV/AIDS (UNAIDS) – developed the HIV Stigma Index to create a credible, action-based research tool based on the founding principle of the Greater Involvement of People Living with HIV (GIPA). To date, the HIV Stigma Index has been implemented in over fifty countries.

At PAN’s 2012 Fall Meetings in both the Positive Forum and at the Executive Directors’ Summit, HIV stigma was identified as a priority area for PAN to address. In 2013, stigma was again identified as a priority in the CBR Collaborative priority setting process. Also in 2013, the CIHR CBR Collaborative Centre (a Program of REACH) began developmental work on the HIV Stigma Index for implementation in Canada, with British Columbia being the first to begin work on the project in early 2015.

This 3-year research project in BC is led by a team of seven experienced leaders who are living with HIV, along with PAN Executive Director Jennifer Evin Jones and academic co-principal investigator Dr. Catherine Worthington, Dr. Melanie Rusch, and PAN’s Director of Evaluation and CBR, Janice Duddy.

 

Objectives of the Stigma Index study in BC

The objectives of this initiative are as follows:

  • Support people living with HIV to be Stigma Index leaders & build capacity for PLHIV to participate in research planning and partnership development
  • Broaden our understanding of HIV stigma and examine the potential resilience factors that may buffer/reduce negative effects on health & social wellbeing
  • Inform provincial/local strategies to reduce stigma and strengthen social networks
  • Improve programs to better meet the needs of people living with HIV and increase access to and uptake of services

The HIV Stigma Index study is a 3-year project incorporating the skills of peer researchers to hold 200-250 quantitative interviews of people living with HIV ensuring inclusion of priority populations (i.e. MSM, indigenous people, etc), and a smaller number of qualitative interviews in the final phase of the project.

For more information on this study, please contact PAN’s Stigma Index Project Manager, Heather Picotte.

The BC People Living with HIV Stigma Index is made possible due to the generous contributions of the Vancouver Foundation, the CIHR Centre for REACH in HIV/AIDS, the CIHR CBR Collaborative (a program of REACH), and the Canadian Institutes for Health Research.

WP_Post_Type Object ( [name] => program_type [label] => Program and Projects [labels] => stdClass Object ( [name] => Program and Projects [singular_name] => Program and Project [add_new] => Add New [add_new_item] => Add New Program and Project [edit_item] => Edit Program and Projects [new_item] => New Program and Project [view_item] => View Program and Project [view_items] => View Posts [search_items] => Search Program and Project [not_found] => Nothing found in the Database. [not_found_in_trash] => Nothing found in Trash [parent_item_colon] => [all_items] => All Program and Projects [archives] => All Program and Projects [attributes] => Post Attributes [insert_into_item] => Insert into post [uploaded_to_this_item] => Uploaded to this post [featured_image] => Featured Image [set_featured_image] => Set featured image [remove_featured_image] => Remove featured image [use_featured_image] => Use as featured image [filter_items_list] => Filter posts list [items_list_navigation] => Posts list navigation [items_list] => Posts list [menu_name] => Program and Projects [edit] => Edit [name_admin_bar] => Program and Project ) [description] => [public] => 1 [hierarchical] => [exclude_from_search] => [publicly_queryable] => 1 [show_ui] => 1 [show_in_menu] => 1 [show_in_nav_menus] => 1 [show_in_admin_bar] => 1 [menu_position] => 7 [menu_icon] => dashicons-feedback [capability_type] => post [map_meta_cap] => 1 [register_meta_box_cb] => [taxonomies] => Array ( ) [has_archive] => pan-programs [query_var] => program_type [can_export] => 1 [delete_with_user] => [_builtin] => [_edit_link] => post.php?post=%d [cap] => stdClass Object ( [edit_post] => edit_post [read_post] => read_post [delete_post] => delete_post [edit_posts] => edit_posts [edit_others_posts] => edit_others_posts [publish_posts] => publish_posts [read_private_posts] => read_private_posts [read] => read [delete_posts] => delete_posts [delete_private_posts] => delete_private_posts [delete_published_posts] => delete_published_posts [delete_others_posts] => delete_others_posts [edit_private_posts] => edit_private_posts [edit_published_posts] => edit_published_posts [create_posts] => edit_posts ) [rewrite] => Array ( [slug] => pan-program [with_front] => [pages] => 1 [feeds] => 1 [ep_mask] => 1 ) [show_in_rest] => [rest_base] => [rest_controller_class] => )
  • All Program and Projects
  • Community Based Research
  • Evaluation and Program Science
  • Positive Leadership Development Institute
  • Training and Leadership
  • The Research and Evaluation work at Pacific AIDS Network is funded through a partnership with the CIHR CBR Collaborative, a program of REACH 2.0.  REACH 2.0 is “a nation-wide, innovative, virtual laboratory for intervention research, participatory evaluation, and applied program science in HIV, hepatitis C, and other sexually transmitted and bloodborne infections.” The PAN Research and… Read more »

  • “Community-based research is research that is conducted with and for, not on, members of a community.” (Kerry Strand. 2003. Community-Based Research and Higher Education: Principles and Practices, p. xxi) Community-based research (CBR) is a methodological practice that places community partnerships at the forefront. promote an interdisciplinary framework that recognizes the multiple social, economic, political and health… Read more »

  • PAN’s Community-Based Research (CBR) program facilitates and supports community-based research initiatives and partnerships to address HIV and HCV  in British Columbia and across Canada.  This program is possible thanks to our partnership with and funding from the CIHR Centre for REACH in HIV/AIDS. Through CBR  we work to help foster CBR in the province by linking… Read more »

  • One of the key pieces in our Training and Leadership program is the Positive Leadership  Development Institute (PLDI). The purpose of PLDI is to support people living with HIV/AIDS to realize their leadership potential and increase their capacity to participate meaningfully in community life. PLDI features three modules to engage people at various stages of… Read more »

  • As part of our Training and Leadership program, webinar topics are  developed with community input gathered at our annual meeting with people from across BC, through our annual Members and Stakeholder Surveys, and by following public health trends and emerging issues. Our goal is to provide member organizations and the community information they can use… Read more »

  • PAN works to facilitate, support and grow participatory evaluation initiatives and associated partnerships that address HIV, HCV and and related issues in British Columbia and across Canada.  This work is made possible through our partnership with and funding from the CIHR Centre for REACH in HIV/AIDS. PAN works within a participatory and community-based evaluation framework: we work to build… Read more »

  • Each year our Fall Conference focuses on key issues in HIV and HCV work in order to educate, support and connect people working across BC. The annual meeting, Executive Directors’ Summit and People Living with HIV forum also identify and prioritize advocacy issues for PAN to address.  The 2017 event will be October 25 and… Read more »

  • The Positive Leadership Development Institute (PLDI) supports people who are living with HIV to realize their leadership potential and increase their capacity to participate meaningfully in community life. Developed in partnership with the Ontario AIDS Network (OAN), these learning modules have supported many people to go on to pursue paid and volunteer work with new… Read more »

  • Going on a weekend training with peers who have HIV can be life-changing. People arrive to meet other attendees and often feel nervous and uncertain about what to expect and how they will do. When the weekend program is finished, people  don’t want to leave. But what does happen when people leave? How does PLDI training… Read more »

  • The Positive Leadership Development Institute News blog covers information about the multi-module PLDI training as well as information about PLDI grads. Some have gone on to work in the HIV sector as researchers, educators, support workers, and more. Read stories on what it’s like to work in community-based research work from someone with lived experience; read… Read more »

Loading

Load More