Research Partnerships

 

Partnerships and collaboration are at the heart of community-based research (CBR) and careful consideration should be given to identifying partners, setting up terms for the collaboration, and evaluating the process as it unfolds. Here are some resources to assist in developing and learning about collaboration in CBR.

 

RESOURCES FROM PAN’S TOOLKIT: 

PAN Research Agreement Checklist– downloadable guidelines for PAN agencies who may be partaking in community-based research for the first time and want to know some of the questions to ask in order to ensure proposed research projects are suitable to their organization’s needs and capacity levels, and that research partnerships are respectful and mutually beneficial.

Grant Roles and Responsibilities – Developed by the CIHR Centre for REACH in HIV/AIDS, this document provides a useful guide to the roles and responsibilities for research grant applicants. The table outlines typical responsibilities for Nominated Principal Applicants, Principal Applicants/Principal Knowledge Users, Co-Applicants/Knowledge Users, and Collaborators on CIHR grants. Research project teams can use this as a tool to decide what roles team members will play in the proposed project.

What to Ask When Researchers Come Knocking, by Carole Strike and Adrian Guta – Printed in CATIE’s Prevention in Focus online publication, this article is a great guide for community organizations on what questions are important to ask when researchers would like to partner with you

Principles of Collaboration from the Canadian Aboriginal AIDS Network (CAAN)- This document is a template for a type of memorandum of understanding called that is used to establish a set of principles that will guide the research process. In short, this document outlines the importance of incorporating cultural values and perspectives into the project.

Terms of Reference for the CAAN Youth Council – This document is an example of what a terms of reference can look like for an advisory committee, council, or research team. Having a terms of reference can help to guide the work of a group and ensure a common understanding of goals, membership, and objectives.

 

 

GUIDE TO COLLABORATION IN RESEARCH: 

Making Research Work in your Community: A Guidebook to Successful Research Partnerships – Co-authored by Community Network for Research Equity & Impact member Natasha Ray, New Haven Healthy Start Consortium Development Coordinator, The Community Foundation for Greater New Haven and Dr. Karen Wang. The guidebook is the result of a study that looked at best practices in community-university partnerships.

 

GREATER INVOLVEMENT OF PEOPLE LIVING WITH HIV/AIDS (GIPA): 

The GIPA principle, or MIPA (Meaningful Involvement of People Living with HIV/AIDS) is an important principle in HIV community-based research. This principle recognizes the rights and responsibilities of people living with HIV (PLHIV), including their right to self determination. Read the UNAIDS GIPA policy brief for an overview of the principle.

Peer Research in Action:  These working papers from the Wellesley Institute, Brenda Roche along with Sarah Flicker and Adrian Guta present Peer Research in Action in three parts: Models of Practice; Management, Support and Supervision; and, Ethical Issues.

 

LEARNING TOOLS: 

Developing a CBPR Partnership  by Sarah Flicker, Kirsten Senturia and Kristine Wong. This online learning unit covers the basic tools for beginning a community-based participatory research partnership. For established partnerships, this unit can be helpful for engaging new partners and for reflecting on and improving upon decisions that have already been made.

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  • Hepatitis C (HCV) is a viral infection just as HIV is a viral infection. Unlike HIV, however, HCV can be treated and cured.  Treatment for HCV is available to anyone living with hepatitis C in BC.   Explore in Detail: Hepatitis C: Epidemiology, testing, treatment, resources HCV Manifesto Hepatitis C Treatment Options Expand in BC

  • The Evaluation News blog covers our work within PAN and with organizations in the community.  Learn about different kinds of evaluation like Realist Evaluation, learn how other organizations are using evaluation approaches, meet evaluators on the job, and find out about how you can help in community evaluation. Explore in detail:  Evaluation News blog Evaluation… Read more »

  • People with HIV can live long and healthy lives if they access to treatment and social support as needed. As people with HIV age, however, complications of aging can compound challenges of living with HIV. Concerns for people with HIV who are aging can include income security, stigma, safe and affordable housing, aging in place,… Read more »

  • Our Fall Conference, AGM, PLHIV Forum and ED Summit gathers people from across the province who share their programs and services, learn about new developments in public health, and help build a vibrant and supportive community. We also offer Regional conferences to customize capacity building-needs for different service areas in BC. After the events, with permission… Read more »

  • We offer our KnowledgeConnect webinars to reach our  member organizations as well as community leaders and stakeholders. Information is available when our viewers have the opportunity to connect. Watch for news on upcoming webinars in the blog. Follow the blog for news on upcoming webinars   Explore webinars by theme: Advocacy, Policy, Public Health Health Determinants… Read more »

  • In April 2016 BC’s Provincial Health Officer Dr. Perry Kendall declared the overdose epidemic in BC a public health emergency.  Despite committed efforts, the epidemic continues, as overdose statistics show.  This has significant impact on first responders, including frontline staff at Pacific AIDS Network (PAN) member and allied organizations, and especially people with lived experience… Read more »

  • In April 2016 BC’s Provincial Health Officer Dr. Perry Kendall declared the overdose epidemic in BC a public health emergency in April 2016.  Despite committed efforts, the epidemic continues, as overdose statistics show.  This has significant impact on first responders, including frontline staff at Pacific AIDS Network (PAN) member and allied organizations, and especially people… Read more »

  • Information about the law and the rights of people with HIV  Having HIV is not a crime, but law can impact heavily on the lives of people with HIV. The Canadian HIV/AIDS Legal Network “is one of the world’s leading organizations tackling the legal and human rights issues related to HIV, and advocating at both… Read more »

  • Evaluation can help guide your organization or group to make decisions about programs, services, research, and more. Participatory research is just what it sounds like- people and communities take part in decision-making about what is evaluated, rather than being told what they “should” evaluate. Community is central to evaluation work and we can help you… Read more »

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