Nothing About Us Without Us Principles

 

Nothing About Us Without Us principles are similar to the Denver Principles on which HIV activism was built: people with lived experience of a disease or social reality deserve a voice in decision-making about directions in policy and programming that affect them.

The inclusion of people with lived experience gives real knowledge about the conditions that policy and programming seek to address, providing a human-rights and socially responsible perspective.

The Nothing About Us Without Us Manifesto: Greater, Meaningful Involvement of People Who Use Illegal Drugs was developed in response to decision-making that excluded, yet deeply impacted health and social impacts, of people who use drugs (PWUD). It reads in part:

Because we use illegal drugs, people and governments often deny us our rights and dignity.  We have the same human rights as everyone else We have the right to meaningfully participate in decision making on issues affecting us. We have the right to be able to make informed decisions about our health, including what we do or do not put into our bodies. We have unique expertise and experiences and have a vital role to play in defining the health, social, legal and research policies that affect us.

Other groups have embraced the the Nothing About Us Without Us principles to different degrees. People with HCV, people with mental health challenges and others have stood up to say they too want a say in decsion-making. The history of people with HIV demanding inclusion has become a social justice movement.

 

Explore:

The Full Report: Nothing About Us Without Us Manifesto: Greater, Meaningful Involvement of People Who Use Illegal Drugs

The Manifesto: Nothing About Us Without Us: A Manifesto by People Who Use Illegal Drugs

 

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  • Hepatitis C (HCV) is a viral infection just as HIV is a viral infection. Unlike HIV, however, HCV can be treated and cured.  Treatment for HCV is available to anyone living with hepatitis C in BC.   Explore in Detail: Hepatitis C: Epidemiology, testing, treatment, resources HCV Manifesto Hepatitis C Treatment Options Expand in BC

  • The Evaluation News blog covers our work within PAN and with organizations in the community.  Learn about different kinds of evaluation like Realist Evaluation, learn how other organizations are using evaluation approaches, meet evaluators on the job, and find out about how you can help in community evaluation. Explore in detail:  Evaluation News blog Evaluation… Read more »

  • People with HIV can live long and healthy lives if they access to treatment and social support as needed. As people with HIV age, however, complications of aging can compound challenges of living with HIV. Concerns for people with HIV who are aging can include income security, stigma, safe and affordable housing, aging in place,… Read more »

  • Our Fall Conference, AGM, PLHIV Forum and ED Summit gathers people from across the province who share their programs and services, learn about new developments in public health, and help build a vibrant and supportive community. We also offer Regional conferences to customize capacity building-needs for different service areas in BC. After the events, with permission… Read more »

  • We offer our KnowledgeConnect webinars to reach our  member organizations as well as community leaders and stakeholders. Information is available when our viewers have the opportunity to connect. Watch for news on upcoming webinars in the blog. Follow the blog for news on upcoming webinars   Explore webinars by theme: Advocacy, Policy, Public Health Health Determinants… Read more »

  • In April 2016 BC’s Provincial Health Officer Dr. Perry Kendall declared the overdose epidemic in BC a public health emergency.  Despite committed efforts, the epidemic continues, as overdose statistics show.  This has significant impact on first responders, including frontline staff at Pacific AIDS Network (PAN) member and allied organizations, and especially people with lived experience… Read more »

  • The inclusion of people with lived experience gives real knowledge about the conditions that policy and programming seek to address, providing a human-rights and socially responsible perspective. Nothing About Us Without Us principles are similar to the Denver Principles on which HIV activism was built: people with lived experience of a disease or social reality deserve… Read more »

  • In April 2016 BC’s Provincial Health Officer Dr. Perry Kendall declared the overdose epidemic in BC a public health emergency in April 2016.  Despite committed efforts, the epidemic continues, as overdose statistics show.  This has significant impact on first responders, including frontline staff at Pacific AIDS Network (PAN) member and allied organizations, and especially people… Read more »

  • Information about the law and the rights of people with HIV  Having HIV is not a crime, but law can impact heavily on the lives of people with HIV. The Canadian HIV/AIDS Legal Network “is one of the world’s leading organizations tackling the legal and human rights issues related to HIV, and advocating at both… Read more »

  • Evaluation can help guide your organization or group to make decisions about programs, services, research, and more. Participatory research is just what it sounds like- people and communities take part in decision-making about what is evaluated, rather than being told what they “should” evaluate. Community is central to evaluation work and we can help you… Read more »

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